All Reports & Publications
MNRDAC Reports
2023 Annual Report
MNRDAC was active in 2023, seeking to operationalize our newly-formed agency, working with the Legislature to pass bills, improve policies, increase representation in state agencies, and build collaborations with community partners. Read our 2023 Annual Report for details.
MNRDAC Reports
2022 Annual Report
Summary of activities undertaken by the Council for Federal Fiscal Year 2022 – Created December 2022
MNRDAC Publications
MN Physician, Treating Rare Disease – New legislation brings hope
The MNRDAC is committed to a community-driven mindset. As we shape our policies, we will always seek insight from people with the lived experience in rare diseases.
Other Reports & Publications
GAO Highlights 2022: Rare Diseases
By definition, few people have any specific rare disease. But there are many different rare diseases—about 7,000—and as a result, an estimated 30 million people in the United States have one or more of them.
Other Reports & Publications
The National Economic Burden of Rare Disease Study – 2021
This study aims to provide the most comprehensive assessment of the total burden of RD to date, including filling the knowledge gap in some of the less well-understood cost components (such as productivity loss in both the labor market as well as in social life) and caregiver economic burden.