All Reports & Publications

MNRDAC Reports

2022 Annual Report

Summary of activities undertaken by the Council for Federal Fiscal Year 2022 – Created December 2022

MNRDAC Publications

MN Physician, Treating Rare Disease – New legislation brings hope

The MNRDAC is committed to a community-driven mindset. As we shape our policies, we will always seek insight from people with the lived experience in rare diseases.

Other Reports & Publications

GAO Highlights 2022: Rare Diseases

By definition, few people have any specific rare disease. But there are many different rare diseases—about 7,000—and as a result, an estimated 30 million people in the United States have one or more of them.

Other Reports & Publications

The National Economic Burden of Rare Disease Study – 2021

This study aims to provide the most comprehensive assessment of the total burden of RD to date, including filling the knowledge gap in some of the less well-understood cost components (such as productivity loss in both the labor market as well as in social life) and caregiver economic burden.