Policy
The Minnesota Rare Disease Advisory Council (MNRDAC) supports and promotes public policy goals that positively impact the rare disease community. We help policymakers understand how their decisions affect the rare disease community. Read our 2024 Policy Guide, our 2024 Legislative Summary, or our Principles Procedures for Policy Identification.
The MNRDAC is committed to incorporating input from our community, here’s our most recent Insights Report.
For more information, contact Executive Director Erica Barnes at [email protected].
Legislation the MNRDAC Is Leading:
Presumptive Eligibility
What it does:
Presumptive Eligibility for Medicaid for children identified by a positive newborn screen.
Read the Presumptive Eligibility bill FAQ
MNRDAC Funding
What it does:
Continued Rare Disease Advisory Council Funding.
Read the MNRDAC Funding bill FAQ
Co Pay Accumulator Ban
What it does:
Removing payers’ ability to prohibit the use of patient assistance programs to go toward an individual’s cost sharing requirements.
Read the Co Pay Accumulator Ban bill FAQ
Drug Formulary Committee Modifications
What it does:
Transparency and operational improvements to the Drug Formulary Committee.
Read the Drug Formulary Committee Modifications bill FAQ
Legislation the MNRDAC Is Supporting:
SF 1023
What it does:
Requires health insurance plans, including Medical Assistance, to cover medically necessary treatment for inherited metabolic diseases.
SF 1101
What it does:
Requires health insurance plans, including Medical Assistance, to cover augmentative and alternative communication (AAC) systems for individuals with severe speech limitations.
Minnesota Government Resource: Who Represents Me?
You can make a difference by making your voice heard by your Senator and Representative.
