Infographic for Providers: 2020 Rare Disease Health Care Access Study
There are over 7,000 rare diseases in existence with over 25 million patients affected. Yet, healthcare access and quality of life are elusive to many rare disease patients, and only 5% of rare disease patients have an approved treatment option. Even when compared to adults with common chronic diseases, adults in Minnesota with rare diseases had significantly worse stigma, physical function, fatigue, and depression, as well as marginally worse anxiety.
Take a look at this infographic to learn more.