Infographic for Patients & Families: 2020 Rare Diseases Heath Care Access Study

There are over 7,000 rare diseases in existence with over 25 million patients affected. Yet, healthcare access and quality of life are elusive to many rare disease patients, and only 5% of rare disease patients have an approved treatment option. Even when compared to adults with common chronic diseases, adults in Minnesota with rare diseases had significantly worse stigma, physical function, fatigue, and depression, and marginally worse anxiety.

Download the survey infographic here and the full survey results can be found here https://pubmed.ncbi.nlm.nih.gov/35549731/