Policy Committee Meeting

Approval of previous meeting minutes

Action: Amy Gaviglio made a motion to approve meeting minutes from October 24, 2023 with one change to the attendance.   Motion seconded by Dawn Stenstrom. All in favor. Roll call vote 4/4.

Old Business

Discussions continued regarding the revisions of the Health Services Advisory Council (HSAC) using the principles and procedures.  The revisions were sent to the Policy Committee members.

Another revision will be sent to members following the discussion to keep the scope broad to avoid limiting the Council.  Language changes to reflect the Council pillars and principles. Modifications will be made to reflect consistency with the Council criteria and discussion.  Director Barnes will submit final copy to Committee at the next meeting.

The Council will vote on the proposed Legislative Agenda.  Deliberation of topics will come from the workplan and align with the pillars and principles of the Council.

Presentation of Potential Legislation

The Council will vote on the proposed Legislative Agenda.  Deliberation of topics will come from the workplan and align with the pillars and principles of the Council.

1. The Council will join with others for an advocacy day in close partnership with the ALS Association. RDAC will be the front runner joining the smaller groups together for a full view of the environment.
2. Other potential legislation that will not be led by RDAC include gene therapies and sustainable pathways addressing affordability and reimbursement pathways.
3. Action: Dawn Stenstrom made a motion to continue to engage and explore ensuing gene therapy options.  Motion seconded by Amy Gavigilo.  All in favor.  Roll call vote 4/4.

Public Comment

None

Adjourn Meeting

Motion called to adjourn by Dawn Stenstrom at 5:00 pm by Rae Blaylark and seconded by Amy Gaviglio. All in favor.  Roll call vote 4/4.