Executive Sub Comittee Meeting

Approval of minutes

ACTION: Representative Reyer motioned to approve the August 13, 2024 minutes, seconded by Maureen Alderman. Motion passed 3/3.

Ongoing Business

Approval of Full Council Agenda

A discussion was had regarding the Full Council agenda. A suggestion was made that with all of the new appointments, we should consider a presentation. All members agreed that a presentation about RDAC will be given by Erica Barnes. A question was raised regarding the taskforce development at the July Full Council Retreat. It was recommended that we hold off and include the new members in a taskforce development.
Action: Maureen Alderman motioned to approve the amended Full Council agenda, seconded by Representative Reyer. Motion Passed 3/3.

New Business

Contracting with MAD and Stratis

Both contracts are in place. Stratis is a firm that MAD recommended. Stratis has completed all of the ECHO programs for the State of Minnesota. The ECHO would be to assist physicians, especially in greater Minnesota, differentiate rare diseases and will give support to physicians to escalate Rare Disease cases.

MAD is assisting with the gene therapy taskforce. They will help us to envision deliverables.

Committee and taskforce Members practices

How to ensure equitable representation

Our Governance documents are not clear on how we go about membership selection. There are members that want to be on committees. It was discussed that there will need to be diversity on the committees and taskforces. We can develop a framework that will allow diverse voices to be heard within the committees and taskforces.

How to ensure consistent communication

We can request reports from each of the committees and taskforces. Written reports will shorten meetings. We can have a written pre-read and allow for questions and discussions at the full council meeting. Director Barnes will sketch out a form that can stand as a template for all committees and taskforces. We can leave a space open for input from other Council members.

Public Comment

None