Join us for Advocacy Day!
March 5th, 2024 10:30am to 3:00pm CST
At the Minnesota State Capitol!
Join the Minnesota Rare Disease Advisory Council and community partners for Rare Disease Advocacy Day on Tuesday, March 5, 2024, at the Minnesota State Office Building, room 400N. This event will provide individuals with lived experiences with rare diseases and policy makers to engage on the issues important to our community.
Advocacy Day Schedule
10:30am to 11:30am: Opening remarks, PAG collaboration & conversation
12:30pm to 2:00pm: Advocates meet (individually) with policy makers
12:00pm to 2:30pm: Open House for policy makers
Registration Required
Meet the members of the Community Advocacy groups!
Advocacy Training Session
Advocacy training session hosted by EveryLife Foundation on Wednesday, February 21st 10-11 CST. To register for this complementary and virtual session, contact [email protected]
Accommodations
Please contact Julie Olson at [email protected] for any accommodations needed.