Rare Disease Advocacy Day

Advocacy Day was a success! We’re deeply grateful for the support and participation of our incredible Advocacy Partners:

• KrebbeConnect
• Yaya Foundation
• CSRF Cushing Support and Research Foundation
• New Hope Research and Foundation
• SPF Spastic Paraplegia Foundation Inc.
• I am not alone: Indian Organization for Rare Diseases
• PWF – Pompe Warriors Foundation
• Sickle Cell Foundation (of Minnesota)
• Midwest Rett Syndrome Foundation
• ALS Association
• UDN DNF Undiagnosed Diseases Network

Learn more about being an advocacy day partner.

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Wednesday April 2, 2025
Legislative meetings: 1:30-3:00pm
Formal programming: 3:15-5:30pm

Location: L’Etoile du Nord Vault Room B15, MN State Capitol

Please RSVP: [email protected]